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Improving your MUO/CUP Service and Pathways

Improving your MUO/CUP Service and Pathways
Past Event
Wed 12 Jun 2024

Vast experience, valuable updates and vibrant networking

Running since 2016, this year’s online course connected professionals from MUO/CUP services across the country. 

With thanks to our conference supporters:

Educational forum packed with relevant, resourceful case study presentations

Participants attended this online course to discover ways to improve services and pathways for patients. Future plans were explored with like-minded colleagues and answers to common questions were discovered.

Key learning outcomes:

  • Managing inappropriate referrals: establish criteria, implement screening and educate colleagues
  • Improving collaboration with primary care: build rapport, gain buy-in and establish referral routes
  • Joining forces with RDC: how to achieve effective integration and pathways
  • Evolving the CUP CNS role: benchmark responsibilities and collaboration with AOS
  • Establishing WGS pathways: service implications, patient experience and common challenges navigated
  • Streamlining your MUO/CUP pathways: improve communication, overcome barriers and measure the impact

Dedicated training

This MUO/CUP focused course armed attendees with the tools to deliver an effective service and provided the opportunity to:

  • Build networks: access to MUO/CUP professionals and thought leaders to build a community of peers for support, advice and guidance
  • Learn: developing understanding by examining and overcoming key issues that underpin evolving CUP teams
  • Look at service development: innovative approaches for enhancing pathways and improving patient experience

With thanks to our conference supporters:

World CUP Alliance is an organisation made up of charities advocating for patients with Cancer of Unknown Primary. The aim of this organisation founded by SJK Foundation & Missie Tumor Onbekend is to bring together patient organisations from Europe and around the World to meet the unmet needs of patients with Cancer of Unknown Primary (CUP).


Click here to read more about the World CUP Alliance.


A long supporter of this event, as of January 2024 CUP Foundation – Jo’s friends will no longer be an active registered charity. They will, however, continue to maintain their website as a valuable source of information about CUP. Please do visit CUP Foundation – Jo’s friends https://cupfoundjo.org/ to find the latest updates in diagnosis, treatment, support and research.

9:00
Registration and networking
9:30
Chair’s opening remarks and introductions
International developments
9:40
Exploring the results of the CUPISCO trial
  • Understanding the research: personalised therapy versus chemotherapy
  • Navigating the trial outcomes: how will this impact your patient care?
  • Experience and impact of genomic profiling in the Australian SUPER study
Professor Alwin Kramer, Medical Oncologist, German Cancer Research Center and University Hospital Heidelberg, University of Heidelberg and Professor Linda Mileshkin, Director Medical Oncology, Peter MacCallum Cancer Centre, Victoria Australia
10:05
CUP services in the Netherlands: insights, developments and data
  • Exploring how CUP services are working in the Netherlands
  • Setting up national systems: hurdles and benefits so far
  • Measuring the outcomes: data from the Netherlands Cancer Institute (NKI)
Hilde Nienhuis, Medical Oncologist, University Medical Center Utrecht, Netherlands
10:30
Questions and answers with your speakers
10:40
Interactive discussion: Benchmarking your MUO/CUP service set up
  • How is your service set up? What does your MDT look like?
  • How are you looking to develop your service?
  • How do you ensure effective collaboration across your team?
10:50
Feedback from interactive discussion: Benchmarking your MUO/CUP service set up
11:00
Screen Break
Trial Updates
11:10
Increasing accessibility to trials for MUO/CUP patients
  • Available and upcoming trials
  • How to access MUO/CUP trials for your patients
  • Exploring the future of MUO/CUP research
Dr Harpreet Wasan, Consultant and Reader in Medical Oncology, Department of Cancer Medicine, Imperial College Healthcare NHS Trust
11:35
Questions and answers with your speakers
11:45
Interactive discussion: Improving and streamlining your pathways and referrals
  • Share your experiences of establishing effective pathways. What worked well and how did you overcome challenges?
  • Which referral pathways have been more challenging and why?
  • What changes are you looking to make going forward?
11:55
Feedback from interactive discussion: Improving and streamlining your pathways and referrals
12:05
Lunch Break
12:40
Charity Showcase: World CUP Alliance set-up, goals and opportunities to collaborate
Warnyta Minnaard and Tanya Knott, Co-Founders, World CUP Alliance
Enhancing diagnosis
12:50
Developing and running a diagnostic service for MUO/CUP
  • Setting up the service: lessons learnt and developments made regionally
  • Case studies: diagnosing suspected malignancy of undefined origin
  • Future plans: progressions for the MUO/CUP service
Dr David Brooks, Macmillan Consultant in Palliative Medicine, Assistant Chief Clinical Information Officer, Unknown Primary Lead Clinician, Chesterfield Royal Hospital NHS Foundation Trust
Refining pathways from primary care
1:25
How to improve collaboration with primary care and GPs to improve patient experience
  • Establishing clear communication channels and straight forward referrals pathways
  • Building rapport with your primary care colleagues to gain buy in to your service
  • Signposting alternative referral routes from primary care for vague symptoms
Dr Juliette Lewis, Consultant OncoGeriatrician & GIM Physician and Dr Emily Johns, Cancer Lead GP, Cardiff and Vale University Health Board, NHS Wales
1:50
Questions and answers with your speakers
2:00
Interactive discussion: Benchmarking the role of CUP Clinical Nurse Specialists
  • How is your CUP nursing team established? How many nurses do you have and how they fit in within the service?
  • Share how you CUP and Acute Oncology services cross over/collaborate. What are the benefits and challenges of this?
  • How will your CUP CNS role develop for the future?
2:10
Feedback from interactive discussion: Benchmarking the role of CUP Clinical Nurse Specialists
2:20
Screen break
2:30
Managing inappropriate referrals to your CUP service
  • Exploring criteria for appropriate and inappropriate referrals
  • Implementing processes to screen referrals and determine suitability of referrals
  • Educating colleagues to prevent inappropriate referrals
Dr Esme Hill, Consultant Clinical Oncologist, Royal Berkshire NHS Foundation Trust
Collaborating with Rapid Diagnostic Services
2:55
Enhancing non-specific symptom pathways (VAGUE) referrals
  • Exploring how vague symptom clinics fit into patient pathways
  • Navigating approaches: ensuring effective integration of CUP and RDC services
  • Determining responsibility for patients: where do they sit?
Carrie Barton, Non-Specific Symptom Clinical Nurse Specialist, Darent Valley Hospital, Dartford and Gravesham NHS Trust
3:20
Questions and answers with your speakers
3:30
Close of day

Speakers on the day included:

Professor Linda Mileshkin

Director Medical Oncology
Peter MacCallum Cancer Centre, Victoria Australia

Professor Alwin Kramer

Medical Oncologist
German Cancer Research Center and University Hospital Heidelberg

Dr Juliette Lewis

Consultant OncoGeriatrician & GIM Physician
Cardiff and Vale University Health Board, NHS Wales

Carrie Barton

Non-Specific Symptom Clinical Nurse Specialist
Darent Valley Hospital, Dartford and Gravesham NHS Trust

Dr Sheela Rao

Consultant Medical Oncologist and Lead for Cancer Unknown Primary
The Royal Marsden NHS Foundation Trust
Biography

Hilde Nienhuis

Medical Oncologist
University Medical Center Utrecht, Netherlands

Dr Harpreet Wasan

Consultant and Reader in Medical Oncology, Department of Cancer Medicine
Imperial College Healthcare NHS Trust
Biography

Dr David Brooks

Macmillan Consultant in Palliative Medicine, Assistant Chief Clinical Information Officer, Unknown Primary Lead Clinician
Chesterfield Royal Hospital NHS Foundation Trust
Biography

Dr Emily Johns

Cancer Lead GP
Cardiff and Vale University Health Board
Biography

Past attendee feedback

Now in its 8th year, this national conference has consistently brought together professionals working across the MUO/CUP pathway. Our MUO/CUP events have always received excellent feedback, but don’t take our word for it, take a look at how other attendees have described our events:

"Informative, enlightening and challenging"
- University Hospitals of Leicester NHS Trust, Improving your MUO/CUP Service and Pathways, June 2024
"Thank you, events like these are really helpful to improve our practice and services"
- University Hospital Southampton NHS Foundation Trust, Improving your MUO/CUP Service and Pathways, June 2024
"All speakers were very knowledgeable and presented well"
- East Lancashire Hospitals NHS Trust, Improving your MUO/CUP Service and Pathways, June 2024
"Good mix of presentations including International speakers, networking opportunities with other UK based clinicians, clinical trial updates and practical ideas regarding MUO/CUP service development"
- University Hospitals of Derby and Burton NHS Foundation Trust, Improving your MUO/CUP Service and Pathways, June 2024
"I found the sessions informative, a good mix of speakers presenting & interactive discussion"
- East Suffolk and North Essex NHS Foundation Trust, Improving your MUO/CUP Service and Pathways, June 2024
"A well put together day, really great topics covered and relevant"
- Sheffield Teaching Hospitals NHS Foundation Trust, Improving your MUO/CUP Service and Pathways, June 2024
“Excellent to network with so many people with an interest in MUO/CUP and have this amount of experience in one forum. Very valuable to have such updates and work with others with the same interest to improve pathways together”
- The Clatterbridge Cancer Centre NHS Foundation Trust, Enhancing your MUO/CUP Pathways, March 2023
“Wonderful, very collaborative and helpful to meet with others in this very specialist area”
- East Kent Hospitals University NHS Foundation Trust, Enhancing your MUO/CUP Pathways, March 2023
“It was very informative and really highlighted the complexity of CUP patients and treatments”
- Nottingham University Hospitals NHS Trust, Cancer of Unknown Primary: Is the unknown now known, June 2022
“Clear information, good dialogue between participants, up to date information”
- University Hospitals Sussex NHS Foundation Trust, Cancer of Unknown Primary: Is the unknown now known, June 2022
“Very informative background and challenges of CUP MUO service”
- Barts Health NHS Trust, Enhancing Referral and Management of MUO/CUP Patients, April 2021
“Very good insight into the various work that is going in towards better diagnosis and better treatment option for CUP/MUO patients”
- Epsom and St Helier University Hospitals NHS Foundation trust, Enhancing Referral and Management of MUO/CUP Patients, April 2021

Why sponsor an Oncology National Networking Forum

Our role at SBK Healthcare is to bring industry together with healthcare professionals so that you can educate and inform your audience. These trail-blazing oncology forums offering dedicated presentations, Q&A, networking and discussion time, each sponsor will be fully immersed into the event and able to effectively engage with your NHS audience.

Interested in having your own event, managed by us?

SBK Healthcare also provides in-house forums. Working closely with you as the client we can research, produce, market and deliver the conference or online forum that best suits the audience and meets your goals.

Reach out today

If you would like more information on our sponsorship options an in-house forum or if you wish to discuss your needs and what solutions may be appropriate for your business, please contact:
Sarah Kemm
Contact: 01732 897788
Email: sarah.kemm@sbk-healthcare.co.uk

More about the World CUP Alliance

World CUP Alliance is an organisation made up of charities advocating for patients with Cancer of Unknown Primary. The aim of this organisation founded by SJK Foundation & Missie Tumor Onbekend is to bring together patient organisations from Europe and around the World to meet the unmet needs of patients with Cancer of Unknown Primary (CUP).

Click here to read more about the World CUP Alliance.